{"id":6818,"date":"2020-11-26T10:20:46","date_gmt":"2020-11-26T10:20:46","guid":{"rendered":"https:\/\/jurmed.ro\/pacienti\/?p=6818"},"modified":"2020-11-26T10:20:46","modified_gmt":"2020-11-26T10:20:46","slug":"are-nevoie-de-tine-vorbeste-cu-ea-viata-dupa-mastectomie","status":"publish","type":"post","link":"https:\/\/jurmed.ro\/pacienti\/are-nevoie-de-tine-vorbeste-cu-ea-viata-dupa-mastectomie\/","title":{"rendered":"\u201eAre nevoie de tine. Vorbeste cu ea!\u201d Viata dupa mastectomie."},"content":{"rendered":"

\u00a0\u201eAre nevoie de tine. Vorbeste cu ea!\u201d Viata dupa mastectomie. <\/strong><\/p>\n

Platforma Pacientul 2.0 lanseaza astazi podcastul despre viata dupa mastectomie, cu marturisirile unor femei care au trecut prin aceasta experienta.<\/strong><\/p>\n

 <\/p>\n

Povestile lor sunt un mesaj optimist si de incurajare si fac parte din campania \u201eAre nevoie de tine. Vorbeste cu ea!\u201d, organizata de Federatia Asociatiilor Bolnavilor de Cancer din Rom\u00e2nia si Asociatia Imunis, cu sprijinul Roche Rom\u00e2nia:<\/strong><\/p>\n

\u00a0<\/em>\u201eA<\/em>colo este o piele foarte subtire si se vede realmente puls<\/em>\u00e2nd inima. <\/em>Iar pentru mine asta este poezie<\/em> si imi da<\/em> forta<\/em>.\u201d, <\/em>spune Cosmina.<\/p>\n

\u201eC\u00e2nd m-am vazut prima data dupa mastectomie, am realizat ca mintea mea a sters fara sa imi dau seama cei 12 ani in care am avut un singur s\u00e2n.\u201d, <\/em>precizeaza Mihaela.<\/p>\n

\u201e<\/em>Reactia <\/em>sotului <\/em>a fost <\/em>una foarte <\/em>normala<\/em>.\u00a0 M-a vazut ca ma schimbam <\/em>si imi puneam o bustiera si<\/em> in bustiera mi-am pus niste bureti. Probam o rochie. Mi-a zis: tu stii ca eu am si uitat, de multe ori nici nu imi dau seama ca tu ai un s\u00e2n.\u201d, <\/em>adauga Delia.<\/p>\n

Podcastul poate fi ascultat pe canalele Pacientul 2.0 de pe Anchor.fm<\/a> si Spotify<\/a>.<\/p>\n

Campania \u201eAre nevoie de tine. Vorbeste cu ea<\/em>\u201d<\/em> mai cuprinde: doua testimonale ale unor femei care au trecut prin experienta unui cancer de s\u00e2n (pot fi vazute aici<\/a> si aici<\/a>), un clip<\/a> cu sfaturi pentru pacientele diagnosticate cu acest tip de afectiune oferite de Yolanda Cretescu, psihoterapeut, si terapii de grup gratuite, at\u00e2t pentru paciente, c\u00e2t si pentru membrii familiilor si apropiatii acestora, care sunt in desfasurare in aceasta perioada.<\/p>\n

\u201d<\/em>Este ceva teribil sa<\/em>–<\/em>i spui cuiva ca o sa ram\u00e2na fara<\/em> s\u00e2n. S<\/em>punea cineva ca diagnosticul ram\u00e2ne acelasi indiferent de modul in care <\/em>dai<\/em> vestea. E adevarat<\/em>,<\/em> dar impactul pe care il are asupra femei<\/em>i c<\/em>\u00e2nd spui intr<\/em>–<\/em>un anumit fel conteaza extrem de mult<\/em>.<\/em> \u00a0Pe mine n<\/em>u ma deranjeaza daca izbucnesc izbucnesc in lacrimi<\/em>. T<\/em>rebuie sa le dai spatiu sa se manifeste<\/em>. <\/em>\u00a0<\/em>E nevoie de foate mult timp. De multa rabdare. Altfel totul e pe banda rulanta. Nu mai tratezi oameni. Tratezi bucati de carne. Exact asta incerc sa evit.\u201d, <\/em>spune dr. Victor Titirez, medic specialist chirurgie onco-plastica, Spitalul Euroclinic.<\/p>\n

In Rom\u00e2nia, peste 9000 de femei afla ca au cancer de s\u00e2n in fiecare an, <\/strong>iar diagnosticul si tratamentul vin cu un puternic impact emotional<\/strong> pentru paciente. De aceea, campania doreste sa transmita ca femeile diagnosticate cu cancer de s\u00e2n au nevoie de empatie, sprijin si intelegere din partea tuturor celor implicati: de la medicii care le comunica diagnosticul, la familie si prieteni.<\/p>\n

 <\/p>\n

Despre FABC<\/em><\/strong><\/p>\n

Federatia Asociatiilor Bolnavilor de Cancer (FABC) a fost infiintata in anul 2005 din necesitatea ca toti cei care lupta impotriva cancerului sa devina o forta cu o voce puternica. FABC este interfata intre organizatiile membre si institutiile statului, institutiile europene implicate in sanatate, precum si organizatiile europene si internationale similare. FABC numara peste 75.000 de membri in intreaga tara, pacienti, supravietuitori si voluntari. <\/em><\/p>\n

FABC este o federatie formata din 26 asociatii care activeaza pe plan local, la nivelul judetelor. Misiunea FABC este de a face lobby si advocacy activ pentru promovarea, respectarea si garantarea drepturilor pacientilor cu cancer, implementarea masurilor necesare pentru reducerea impactului acestei maladii. Pentru mai multe detalii va rugam sa accesati: <\/em>www.fabc.ro<\/em><\/a>.<\/em><\/p>\n

Despre Asociatia Imunis<\/em><\/strong><\/p>\n

Asociatia Imunis a fost fondata in anul 2016 de Cosmina Grigore, supravietuitoare a cancerului de s\u00e2n si primul Patient Coach din Rom\u00e2nia. Motto-ul asociatiei este \u201eDe la pacient la pacient\u201d si isi propune, prin activitatile sale, sa educe si sa informeze pacientii diagnosticati cu cancer din Rom\u00e2nia. Echipa este formata din pacienti si membrii familiilor acestora care inteleg nevoile unei persoane diagnosticate cu aceasta afectiune. Membrii asociatiei Imunis militeaza pentru preventia cancerului, fapt mai usor de facut, mai putin dureros si, de asemenea, mai putin costisitor. Mai multe detalii, pe <\/em>www.asociatiaimunis.ro.<\/em><\/a><\/p>\n

Despre Roche <\/em><\/strong><\/p>\n

Roche este cea mai mare companie de biotehnologie la nivel mondial, ce ofera medicamente diferen\u0163iate clinic in domeniul oncologiei, imunologiei, bolilor infec\u0163ioase, oftalmologiei \u015fi afec\u0163iunilor sistemului nervos central. Roche este, de asemenea, lider mondial in diagnosticul in vitro \u015fi in diagnosticul histologic al cancerului, precum \u015fi pionier in managementul diabetului. Pentru orice informatii suplimentare va rugam sa accesati <\/em>www.roche.ro<\/em><\/a>.<\/em><\/p>\n","protected":false},"excerpt":{"rendered":"

\u00a0\u201eAre nevoie de tine. Vorbeste cu ea!\u201d Viata dupa mastectomie. Platforma Pacientul 2.0 lanseaza astazi podcastul despre viata dupa mastectomie, cu marturisirile unor femei care au trecut prin aceasta experienta. 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