{"id":8053,"date":"2021-10-29T12:38:44","date_gmt":"2021-10-29T12:38:44","guid":{"rendered":"https:\/\/jurmed.ro\/pacienti\/?p=8053"},"modified":"2021-10-29T12:55:26","modified_gmt":"2021-10-29T12:55:26","slug":"ziua-mondiala-a-psoriazisului-29-octombrie-provocari-in-pandemie-si-solutii-pentru-pacientii-cu-psoriazis","status":"publish","type":"post","link":"https:\/\/jurmed.ro\/pacienti\/ziua-mondiala-a-psoriazisului-29-octombrie-provocari-in-pandemie-si-solutii-pentru-pacientii-cu-psoriazis\/","title":{"rendered":"Ziua Mondiala a Psoriazisului \u2013 29 octombrie. Provocari in pandemie si solutii pentru pacientii cu psoriazis"},"content":{"rendered":"

Organizatia Mondiala a Sanatatii serbeaza pe 29 octombrie <\/strong>\u201cZiua Mondiala a Psoriazisului<\/strong>\u201d. Incepand din anul 2004, Societatea Romana de Dermatologie s-a implicat in aceasta campania care vizeaza sa creasca gradul de informare si educare a publicului larg cu privire la psoriazis\/artrita psoriazica, atragand in acelasi timp atentia asupra faptului ca psoriazisul nu este o afectiune contagioasa.<\/em><\/strong><\/p>\n

In Romania, campania se desfasoara in centrele universitare de dermatologice (Bucuresti, Cluj-Napoca, Craiova, Constan\u0163a, Iasi, Targu Mures, Sibiu, Oradea, Timisoara) si alte orase.<\/p>\n

Psoriazisul<\/a> este o afectiune cronica, inflamatorie, determinata genetic, cu o frecventa de 4,9% in Romania.\u00a0 Netratat, psoriazsul se asociaza cu:\u00a0depresia, stresul, iar frustarea afecteaza relatiile pacientului cu familia, prieteni, etc. <\/strong><\/p>\n

Psoriazisul apare pe un fond genetic, sub influen\u0163a anumitor factori declansatori. Boala afecteaza in propor\u0163ii egale femei si barba\u0163i, avand doua varfuri de incidenta 25-35 de ani si 60-70 de ani, insa poate sa apara la orice varsta, inclusiv la copii. Cauzele exacte ale psoriazisului nu sunt cunoscute. Este insa confirmat faptul ca boala este legata de sistemul imunitar si ca exista o predispozi\u0163ie genetica de a dezvolta aceasta afec\u0163iune, iar stresul mental si emo\u0163ional este un factor important care determina exacerbarea bolii.<\/p>\n

Psoriazisul a fost declarat de catre Organizatia Mondiala a Sanatatii (OMS) a 5-a cea mai importanta boala cronica netransmisibila, alaturi de boli precum diabetul, cancerul, bolile cardiovasculare sau respiratorii.<\/p>\n

Statisticile arata ca psoriazisul afecteaza peste 125.000.000 de oameni la nivel mondial.<\/p>\n

Din pacate, tara noastra se afla printre primele locuri in Europa, avand aproximativ 400.000 de oameni diagnosticati cu psoriazis. Un procent de 20-30% dintre pacientii cu psoriazis dezvolta si artrita psoriazica, care in timp duce la leziuni articulare severe si deformante, care deseori provoaca handicap. In Romania, psorizisul ramane o boala frecventa.<\/p>\n

In general, pacientii cu psoriazis sunt adesea vizati in studiile referitoare la ingrijirea bolnavilor si in cele epidemiologice. Statisticile oferite pot ghida statele si comunitatea internationala cu privire la adoptarea masurilor potrivite unui management corect al psoriazisului.<\/p>\n

Psoriazisul este\u00a0mai mult decat o boala de piele, determinand multiple implica\u0163ii la nivel psihosocial, profesional si economic. Acestei\u00a0 afectiuni ii sunt asociate numeroase comorbiditati (in\u00a0 contextul infectarii cu SARS-COV-2, una dintre dintre\u00a0 cele mai reprezentative fiind obezitatea).<\/p>\n

43% dintre bolnavi considera ca psoriazisul este o\u201drusine sociala\u201d<\/p>\n

60% dintre pacien\u0163i sufera de episoade depresive<\/p>\n

1 din 3 bolnavi a avut un gand suicidal intr-un anumit moment<\/p>\n

50% dintre pacien\u0163i relateaza o calitate a vie\u0163ii scazuta din cauza discriminarii la locul de munca<\/p>\n

62% dintre pacien\u0163i se confrunta cu probleme financiare din cauza bolii<\/p>\n

Anual, prin aceasta campanie SRD a incercat sa atraga aten\u0163ia popula\u0163iei prin postarea unor mesaje si concepte vizuale in spa\u0163ii publice precum unita\u0163i de inva\u0163amant (gradini\u0163e, scoli, licee, faculta\u0163i), sali de sport, saloane de infrumuse\u0163are, bazine de inot, plaje, cladiri de birouri\u00a0 si altele, unde persoanele bolnave de psoriazis pot fi discriminate din cauza lipsei de informare despre aceasta afec\u0163iune.\u00a0 Efectul campaniei\u00a0 s-a reflectat si\u00a0 in cresterea adresabilita\u0163ii la medicul dermatolog, psiholog si chiar nutri\u0163ionist\u00a0 (specialita\u0163i conexe la care este bine sa se adreseze pacientul cu psoriazis).<\/p>\n

\u201cIn anul 2021 ca si in anul 2020 managementul pacientului cu psoriazis s-a confruntat cu provocari generate de pandemia Covid 19. Societatea Romana de Dermatologie a continuat sa se implice activ astfel incat pacietii sa poate beneficia de tratament si asistenta medicala adecvata in special pentru a \u00a0redirectiona pacientii care nu au acces la unitatile medicale. De asemenea, SRD a elaborat materiale de informare privind riscurile si beneficiile tratamentului in aceasta perioada, atat pentru medici cat si pentru pacienti. O provocare suplimentara a fost legata de procesul de vaccinare anti-Covid 19. SRD impreuna cu comisia din Ministerul Sanatatii au recomandat in principiu vaccinarea pacientilor cu psoriazis si a fost elaborat un algoritm care stabileste conduita terapeutica in perioada vaccinarii. Toate acestea au fost afisate pe site-ul SRD si pe site-ul Ministerului Sanatatii. De real ajutor, atat pentru medici cat si pentru pacienti, a continuat sa fie telemedicina<\/em>\u201d a declarat Dr. Alin Nicolescu \u2013 Secretar General SRD.<\/em><\/p>\n

In Romania, bolnavii de psoriazis au inceput sa fie inregistra\u0163i intr-un Registru Unic, la nivel na\u0163ional, demers ini\u0163iat de SRD. Din anul 2015 pana in prezent au fost inregistrati in Registrul National de boli Dermatovenerice 10.517 de pacienti cu psoriazis dintre care 5.687 sunt barba\u0163i si 4.470 sunt femei, iar la nivelul Municipiului Bucuresti fiind inregistrati 1.267 de pacienti, restul de 8.890 fiind din alte localitati din Romania.<\/p>\n

Trebuie sa intelegem ca psoriazisul nu este o boala a rusinii,\u00a0 nu este o boala contagioasa si ca paleta destul de larga de solutii terapeutice actuale ofera posibilitatea unui tratament care sa duca la remisiunea leziunilor pe perioade lungi de timp.<\/p>\n

Surse:<\/strong><\/p>\n

Ifpa-pso.com<\/strong><\/p>\n

Journal of Personalized Medicine<\/strong><\/p>\n

WHO<\/strong><\/p>\n

Despre Societatea Romana de Dermatologie <\/strong><\/p>\n

Asocia\u0163ia profesionala si stiin\u0163ifica a medicilor dermatovenerologi din Romania – Societatea Romana de Dermatologie (SRD) – 91 de ani de activitate. Colaboreaza strans cu Academia Europeana de Dermatovenerologie (EADV) si este partener al Asocia\u0163iei Europene Dermatologie si Oncologie (EADO).<\/p>\n

www.srd.ro<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Organizatia Mondiala a Sanatatii serbeaza pe 29 octombrie \u201cZiua Mondiala a Psoriazisului\u201d. Incepand din anul 2004, Societatea Romana de Dermatologie s-a implicat in aceasta campania care vizeaza sa creasca gradul […]<\/p>\n","protected":false},"author":6,"featured_media":8059,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_exactmetrics_skip_tracking":false,"_exactmetrics_sitenote_active":false,"_exactmetrics_sitenote_note":"","_exactmetrics_sitenote_category":0,"footnotes":""},"categories":[1],"tags":[855,722,854,853],"class_list":["post-8053","post","type-post","status-publish","format-standard","has-post-thumbnail","category-stiri-noutati","tag-artrita-psoriazica","tag-psoriazis","tag-societatea-romana-de-dermatologie","tag-ziua-mondiala-a-psoriazisului"],"yoast_head":"\nProvocari in pandemie si solutii pentru pacientii cu psoriazis<\/title>\n<meta name=\"description\" content=\"Psoriazis - o afectiune cronica, inflamatorie, determinata genetic, cu o frecventa de 4,9% in Romania si a 5-a cea mai importanta boala cronica netransmisibila.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/jurmed.ro\/pacienti\/ziua-mondiala-a-psoriazisului-29-octombrie-provocari-in-pandemie-si-solutii-pentru-pacientii-cu-psoriazis\/\" \/>\n<meta property=\"og:locale\" content=\"ro_RO\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Provocari in pandemie si solutii pentru pacientii cu psoriazis\" \/>\n<meta property=\"og:description\" content=\"Psoriazis - o afectiune cronica, inflamatorie, determinata genetic, cu o frecventa de 4,9% in Romania si a 5-a cea mai importanta boala cronica netransmisibila.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/jurmed.ro\/pacienti\/ziua-mondiala-a-psoriazisului-29-octombrie-provocari-in-pandemie-si-solutii-pentru-pacientii-cu-psoriazis\/\" \/>\n<meta property=\"og:site_name\" content=\"Jurmed - Pacienti\" \/>\n<meta property=\"article:published_time\" content=\"2021-10-29T12:38:44+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2021-10-29T12:55:26+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/jurmed.ro\/pacienti\/wp-content\/uploads\/sites\/3\/2021\/10\/zmp-2021-afis-final.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"300\" \/>\n\t<meta property=\"og:image:height\" content=\"424\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"costelv\" \/>\n<meta name=\"twitter:label1\" content=\"Scris de\" \/>\n\t<meta name=\"twitter:data1\" content=\"costelv\" \/>\n\t<meta name=\"twitter:label2\" content=\"Timp estimat pentru citire\" \/>\n\t<meta name=\"twitter:data2\" content=\"4 minute\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/jurmed.ro\/pacienti\/ziua-mondiala-a-psoriazisului-29-octombrie-provocari-in-pandemie-si-solutii-pentru-pacientii-cu-psoriazis\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/jurmed.ro\/pacienti\/ziua-mondiala-a-psoriazisului-29-octombrie-provocari-in-pandemie-si-solutii-pentru-pacientii-cu-psoriazis\/\"},\"author\":{\"name\":\"costelv\",\"@id\":\"https:\/\/jurmed.ro\/pacienti\/#\/schema\/person\/d32bd0fe3243bb12082045e5e5635d2d\"},\"headline\":\"Ziua Mondiala a Psoriazisului \u2013 29 octombrie. 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