{"id":9482,"date":"2024-07-11T09:35:05","date_gmt":"2024-07-11T09:35:05","guid":{"rendered":"https:\/\/jurmed.ro\/pacienti\/?p=9482"},"modified":"2024-07-11T09:35:05","modified_gmt":"2024-07-11T09:35:05","slug":"noul-site-dedicat-pacientilor-cu-scleroza-multipla","status":"publish","type":"post","link":"https:\/\/jurmed.ro\/pacienti\/noul-site-dedicat-pacientilor-cu-scleroza-multipla\/","title":{"rendered":"Noul site dedicat pacientilor cu Scleroza Multipla"},"content":{"rendered":"

Un nou site dedicat comunitatii persoanelor cu scleroza multipla din Romania a fost lansat: www.msresistance.ro<\/a>.<\/span> Site-ul a fost dezvoltat de Roche<\/a> Romania si se adreseaza tuturor persoanelor care sufera de Scleroza Multipla (SM) din Romania, precum si persoanelor din comunitatea acestora, care isi doresc sa fie informate cu privire la aceasta afectiune neurologica.<\/p>\n

Scleroza Multipla este o boala inflamatorie cronica si progresiva a sistemului nervos central (SNC), ce afecteaza creierul, maduva spinarii si nervii optici pentru care in prezent nu exista vindecare[1]<\/a>. Evolu\u0163ia bolii si simptomele acesteia variaza de la o persoana la alta, insa pot afecta aproape fiecare parte a corpului si a sistemului nervos. Persoanele care sufera de SM pot experimenta o serie de simptome, cum ar fi oboseala, dificulta\u0163i de mers si de vedere, probleme cu somnul sau depresie[2]<\/a>. Scleroza Multipla este principala cauza de dizabilitate non traumatica la persoanele tinere, se diagnosticheaza de obicei intre varstele de 20 si 40 de ani si este de doua ori mai frecventa la femei decat la barbati[3]<\/a>.<\/p>\n

Este important ca pacien\u0163ii sa ramana informa\u0163i cu privire la progresele stiin\u0163ei din spatele Sclerozei Multiple, de la testele efectuate la diagnosticare si importanta monitorizarii simptomelor. Intelegerea motivelor pentru care simptomele difera atat de mult si identificarea masurilor ce pot fi luate pentru a reduce impactul SM asupra vietii sunt esentiale. De aceea informa\u0163iile din www.msresistance.ro<\/a><\/span> sunt menite sa ajute pacien\u0163ii sa isi pastreze independen\u0163a cat mai mult timp si sa poata sa duca un stil de via\u0163a implinit. Site-ul con\u0163ine sfaturi despre exerci\u0163ii fizice si beneficiile acestora, alimenta\u0163ie si un\u00a0 stil de via\u0163a sanatos precum si modalitati de protejare a sanata\u0163ii psihice, care sa ajute pacien\u0163ii sa pastreze controlul asupra afec\u0163iunii.<\/p>\n

\u201cScleroza Multipla\u00a0 este o afec\u0163iune complexa, cu manifestari clinice diverse. In ultimii ani s-au facut multe progrese legate nu numai de in\u0163elegerea mecanismelor de apari\u0163ie a bolii (desi cauza nu este cunoscuta inca) dar si in dezvoltarea unor noi molecule pentru tratamentul de fond al acesteia. Diagnosticul precoce si ini\u0163ierea terapiei cat mai curand posibil sunt deziderate posibil de realizat, pentru \u0163inerea sub control a bolii si intarzierea progresiei dizabilita\u0163ii. In echipa terapeutica, pacientul si medicul trebuie sa ia impreuna decizia optima de tratament, tinand cont de forma de boala, factorii de prognostic dar si de aspectele socio-profesionale si individuale ale fiecarui pacient, pentru limitarea impactului fizic si psihic al acestei afec\u0163iuni, cu men\u0163inerea calita\u0163ii vie\u0163ii in condi\u0163ii cat mai bune, cu limitarea gradelor de dependen\u0163a care se pot instala in timp.\u201d, a declarat Conf. Dr. Irene Davidescu, medic primar neurologie, Spitalul Clinic Colentina.<\/p>\n

In Romania, potrivit statisticilor oficiale,\u00a05.160 de\u00a0 pacien\u0163i cu Scleroza Multipla se aflau sub tratament\u00a0in 2022[4]<\/a> prin Programul na\u0163ional de tratament al bolilor neurologice.<\/p>\n

***<\/p>\n

Despre Roche<\/strong><\/p>\n

Fondata in 1897 in Basel, Elve\u0163ia, drept una dintre primele companii producatoare de medicamente originale la scara industriala, Roche a devenit cea mai mare companie de biotehnologie din lume si lider mondial in diagnosticul in vitro<\/em>. Compania urmareste excelen\u0163a in stiin\u0163a pentru a descoperi si dezvolta medicamente si teste de diagnostic cu scopul de a imbunata\u0163i si salva vie\u0163ile oamenilor de pe tot globul. Suntem unul dintre pionierii medicinei personalizate si ne dorim sa continuam sa transformam felul in care furnizata asistenta medicala, pentru a avea un impact si mai mare. Compania Genentech, din Statele Unite, este de\u0163inuta in totalitate de grupul Roche. De asemenea, Roche este ac\u0163ionarul majoritar al companiei Chugai Pharmaceutical din Japonia.<\/p>\n

Recunoscand efortul nostru de a urmari o perspectiva pe termen lung in tot ceea ce facem, Roche a fost desemnata una dintre cele mai sustenabile companii din industria farmaceutica de catre Dow Jones Sustainability Indices pentru al cincisprezecelea an consecutiv. Aceasta distinctie reflecta, de asemenea, eforturile noastre de a imbunatati accesul la asistenta medicala impreuna cu partenerii locali din fiecare tara in care lucram.<\/p>\n

Genentech, in Statele Unite, este un membru detinut in totalitate al grupului Roche. Roche este actionarul majoritar al Chugai Pharmaceutical, Japonia.<\/p>\n

Prezent pe piata romaneasca inca din perioada interbelica, Roche isi redeschide reprezentanta locala in anul 1992, urmind ca in anul 2005, grupul Roche sa infiinteze societatea comerciala S.C. Roche Romania SRL care a preluat activitatea reprezentantei din Bucuresti. Roche ofera produse si servicii care acopera intreg spectrul ingrijirilor de sanatate, pornind de la preventie, tratament si pana la monitorizarea post-tratament, in arii terapeutice majore unde exista nevoi medicale neacoperite inca. Prin intermediul Roche Romania, ambele divizii ale Grupului Roche – divizia de farmaceutice si divizia de diagnostice – sunt prezente pe piata din tara noastra, oferind produse si servicii de inalta specializare. Pentru orice informatii suplimentare, va rugam sa accesati www.roche.ro<\/a><\/span><\/p>\n

Departamentul de Comunicare al Roche Romania: andrei.vlad@roche.com<\/span><\/a>, 0728292664<\/p>\n

[1]<\/a>MS International Federation. What is MS? Disponibil la: http:\/\/www.msif.org\/about-ms\/what-is-ms\/<\/a>. Accesat iulie 2024.<\/h6>\n
[2]<\/a>National Multiple Sclerosis Society. Multiple Sclerosis Symptoms. Disponibil la https:\/\/www.nationalmssociety.org\/understanding-ms\/what-is-ms\/ms-symptoms<\/a>. Acesat iulie 2024.<\/h6>\n
[3]<\/a> \u00a0Multiple Sclerosis International Federation. Atlas of MS 2020-2022. Disponibil la: http:\/\/www.msif.org\/about-us\/advocacy\/atlas\/<\/a>. Accesat iulie 2024.<\/h6>\n
[4]<\/a>Casa Nationala de Asigurari de Sanatate, Programul na\u0163ional de tratament al bolilor neurologice, disponibil la: https:\/\/cnas.ro\/wp-content\/uploads\/2022\/04\/Programul-national-de-tratament-al-bolilor-neurologice-.pdf<\/a>. Accesat iulie 2024.<\/h6>\n","protected":false},"excerpt":{"rendered":"

Un nou site dedicat comunitatii persoanelor cu scleroza multipla din Romania a fost lansat: www.msresistance.ro. Site-ul a fost dezvoltat de Roche Romania si se adreseaza tuturor persoanelor care sufera de […]<\/p>\n","protected":false},"author":6,"featured_media":9483,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_exactmetrics_skip_tracking":false,"_exactmetrics_sitenote_active":false,"_exactmetrics_sitenote_note":"","_exactmetrics_sitenote_category":0,"footnotes":""},"categories":[1],"tags":[1274,1273,514,1271,1272],"class_list":["post-9482","post","type-post","status-publish","format-standard","has-post-thumbnail","category-stiri-noutati","tag-chugai-pharmaceutical","tag-genentech","tag-roche","tag-scleroza-multipla","tag-spitalul-clinic-colentina"],"yoast_head":"\nNoul site dedicat pacientilor cu Scleroza Multipla - Jurmed - Pacienti<\/title>\n<meta name=\"description\" content=\"Site-ul a fost dezvoltat de Roche Romania si se adreseaza tuturor persoanelor care sufera de Scleroza Multipla (SM) din Romania\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/jurmed.ro\/pacienti\/noul-site-dedicat-pacientilor-cu-scleroza-multipla\/\" \/>\n<meta property=\"og:locale\" content=\"ro_RO\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Noul site dedicat pacientilor cu Scleroza Multipla - 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